Thursday, January 24, 2008

Kenzie Update

Well, I have had a crazy few weeks. Jeremy had some pretty scary health issues the day after Kenzie's surgery, but he is doing much better now and is able to drive again and all that. Now Kenzie has had a roller coaster of a week. She woke up on Tuesday morning, and I put her hearing aid on (she hears and does remarkably well with her aid. Her implant is not activated yet, so that is all she has to hear with. Anyways, I turned it on and then I watched her turn it off, I told her it needed to stay on, she looked at me kind of confused and said, "Silly mama, you forgot to turn it on." I take it out and it was definitely on, so she says, "Maybe the battery is dead or 'somthin.' So I go get her other hearing aid and put that one in, by this point Kenz was starting to freak out a bit.(I was too) She starts sobbing and telling me she can't hear anything at all. Every time I would look at her and try to talk, she would sob and say "MOMMY, I CAN"T HEAR YOU!" She asked if I could hear her, I shook my head and she cried even harder. Then she looked at me with her little lip trembling and said, "Mommy I am really deaf now." My heart was breaking. I got Skyler off to school, called into my work and let them know what was going on. They were super supportive and told me to go right over to Phoenix Childrens Hospital and wait to be seen. So we got in right away and they tested her hearing and she had a 50 decibel drop, for those of you who don't know, that is HUGE! SO basically she could not detect any speech sounds or anything for that matter with her hearing aid. I was devastated and finally broke down at the audiologists. I mean with her just losing her right ear and now the left, it was too much. Luckily they activated her new implant, so she is hearing now, it will take a little while to get used to what she is hearing, but it was the greatest blessing to have her turned on that same day. The surgeon gave a week of steroids for her to take and see if it would help restore her hearing. Then I found out she has Enlarged Vestibular Aqueducts which is why she is deaf. I guess, when you have EVA, just a head bump can take away your hearing. In almost all cases, that hearing is never restored. The surgeon said the steroids most likely wouldn't help, but it was the only thing we could try. So my family all contacted each other and prayed for Kenz and her name was put in the temple. Now here is the incredible part, I was putting her to bed last night, I used to be able to put my mouth in her ear and talk really loud to say goodnight or whatever else once she was in bed and all her hearing stuff was off, so out of habit I gave her a kiss and put my mouth to her ear and asked her a question and she answered, so I asked her a couple more and she answered again. I was shocked. I was pretty much told that it would take a miracle to be able to ever do that again, but I have come to find that miracles are around every corner for us. I mean she has not even started taking her steroids or anything and now she has that ear back???? Obviously she can't hear anything if i am not talking right in the canal and loudly, but that is awesome compared to not being able to hear ANYTHING. SO that is the story on her, if any of you finished reading this whole monstrous post, thank you, you must really care. Her incision looks about the same as it did in the previous post and she says her ear and head hurt with the processor now behind her ear, but she will get used to it again. Thanks again for all the love and concern.

10 comments:

Angela said...

Wow Ali. Scary stuff. Thanks for the update. So are you going to still give her the steroids, or take her back to see if she's recovered? Good luck, we'll be thinking of you and praying for you!

The McEwen Family said...

wow that was a wonderful story i am so happy for you and that everything is turning out okay. and you are always in our prayers!!

PEHNelson said...

Allison! I cried right with you! You and your baby are in my thoughts and prayers!!! I hope all gets better!!!

Sabra said...

Thank you for the story, and you are so wise to write it down. I am trying to make a little book of Strider's situation last year (our little miracle), and I just can't seem to recall enough detail. I am so mad at myself. I'm glad things are better. I hope Jeremy is well!

Harding Family said...

Oh man, what a story. You deserve all the miracles that come your families way! You'll be in our prayers. Please let me know if I can do anything for you. Email me with your address please. bikenmiken@gmail.com Thanks!

Thompson Family said...

Holy cow! How awful! But then what a happy ending! Well I guess it's not totally over so it could get even better!

Nat said...

Oh Alison- so glad to hear the happy ending! That is a lot to go through, and I appreciate you sharing it with others. She is a little doll. It was good to see you the other day- next time let's hang out for more than one minute, yeah? (:

Audycamp said...

that broke my heart..i could just picture her crying to you that she was really deaf now & you trying not to cry. I am so sorry that things have been so scary for you lately. I Love You so much. Know that you are always in my heart and prayers.-audy

Tia said...

Okay I can't help but tear up every time I read what you write. She is a sweet heart and I know that this has to be one of the hardest things you've ever gone through. Your a stronger woman because of it, and you inspire me to be the same!

Jeff and Ang said...

I hope everything works out with your family, we will keep you in our prayers